Minimum data set of mucormycosis

Mucormycosis, the third most prevalent invasive fungal disease ranked, has a very high mortality rate. The timely diagnosis, coupled with the prompt administration of drug and surgical interventions, yields a substantial reduction in mortality rates. To accomplish these objectives, the acquisition of accurate data and information assumes paramount importance. A minimum data set serves as a crucial tool for data collection, offering healthcare managers a standardized information resource. Consequently, the aim of this study was to develop a MDS to mucormycosis in Iran.

This research was conducted using a practical approach, employing a two-step Delphi method. An extensive literature review was conducted aimed at extracting relevant information specific to mucormycosis. two individual checklists were developed. Following these checklists underwent rigorous evaluation through the Delphi, involving the 20 experts, consisting of five specialists each in the fields of infectious diseases, dermatology, otolaryngology, and health information management.

Experts thoroughly examined a total of 72 out of 86 items on the demographic information checklist throughout both the initial and second phases of the Delphi process. Furthermore, within the clinical information checklist, experts meticulously evaluated 303 out of 323 data elements during the first and second phases of the Delphi process. The demographic checklist was structured into four categories basic information, demographic information, insurance information, and referral information. The clinical checklist consisted of seven categories, encompassing risk factors, types of mucormycosis disease, clinical signs and symptoms, diagnosis, species, treatment, and outcomes.

In recent years, the prevalence of underlying diseases has witnessed an upward trend, resulting in a subsequent escalation in the number of mucormycosis patients. In light of the burgeoning incidence of mucormycosis cases in Iran, it becomes imperative to establish a standardized MDS for this disease.