Quality of Life in Children and Adolescents with Congenital Heart Diseases in Zahedan, Iran
Author(s):
Abstract:
BackgroundLife expectancy has increased in congenital heart diseases (CHD) patients and the interest has risen considering the quality of life (QOL). The study aimed to compare patients and proxy-parents reports on CHD children' QOL.
Materials and MethodsThis cross-sectional study performed on 165 CHD patients aged 2-18 years during 2016 using Pediatric Quality of Life 3.0 (PedsQL 3.0) inventory. PedsQL 3.0 has same dimensions with different question for various age groups. The internal consistency of the inventory scales and subscales was assessed by means of Cronbachs alpha. Scales with reliability ≥ 0.70 were recommended.
ResultsThe overall mean score of QOL was significantly higher in parents perceived (51.78±10.87) compared to childrens perceived (48.61±11.25) (t= -2.615, P=0.009). The anxiety was significantly higher (56.23 ±17.93 vs. 47.31± 17.96) in parents perceived compared to children (t= -2.281, P=0.025). The cognition has been perceived significantly better by children than parents (51.22±15.76 vs. 41.53± 13.15). Children with simple diseases had higher score of quality of life (53.09±13.44) compared with those children with complex diseases (42.73±18.23) (t=2.786, P=0.007) for 2-4 years age in parent's perceived. The mean scores in heart problem scale were 46.74±13.64 and 61.14±18.17 and for the communication scale were 28.49±13.87 and 41.77±20.23 for pre and post operated children respectively for the age group of 5-7 years in parent's perceived.
ConclusionResulted no impacts by two clinical (types of diseases and operation) factors on CHD patient's Health-related quality of life (HRQOL). Therefore should be considered more clinical factors to detect the gap in QOL in CHDs.
Materials and MethodsThis cross-sectional study performed on 165 CHD patients aged 2-18 years during 2016 using Pediatric Quality of Life 3.0 (PedsQL 3.0) inventory. PedsQL 3.0 has same dimensions with different question for various age groups. The internal consistency of the inventory scales and subscales was assessed by means of Cronbachs alpha. Scales with reliability ≥ 0.70 were recommended.
ResultsThe overall mean score of QOL was significantly higher in parents perceived (51.78±10.87) compared to childrens perceived (48.61±11.25) (t= -2.615, P=0.009). The anxiety was significantly higher (56.23 ±17.93 vs. 47.31± 17.96) in parents perceived compared to children (t= -2.281, P=0.025). The cognition has been perceived significantly better by children than parents (51.22±15.76 vs. 41.53± 13.15). Children with simple diseases had higher score of quality of life (53.09±13.44) compared with those children with complex diseases (42.73±18.23) (t=2.786, P=0.007) for 2-4 years age in parent's perceived. The mean scores in heart problem scale were 46.74±13.64 and 61.14±18.17 and for the communication scale were 28.49±13.87 and 41.77±20.23 for pre and post operated children respectively for the age group of 5-7 years in parent's perceived.
ConclusionResulted no impacts by two clinical (types of diseases and operation) factors on CHD patient's Health-related quality of life (HRQOL). Therefore should be considered more clinical factors to detect the gap in QOL in CHDs.
Keywords:
Language:
English
Published:
International Journal of Pediatrics, Volume:5 Issue: 37, Jan 2017
Pages:
4193 to 4208
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