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عضویت

جستجوی مقالات مرتبط با کلیدواژه « chronic illness » در نشریات گروه « پزشکی »

  • Roshni Mary Peter, Alex Joseph*
    BACKGROUND

    Aging poses a significant risk for activity and functional limitations. Problems among aged populations are interrelated, and these problems can lead to other disorders and finally leave a negative impact on the quality of life (QoL) This study used the screening of activity limitation and safety awareness (SALSA) scale to screen and measure activity limitations among the elderly.

    MATERIALS AND METHODS

    A community‑based descriptive cross‑sectional study was conducted among 928 elderly from the three districts of Tamil Nadu, India. The SALSA scale was administered via a door‑to‑door interview, and data analysis was carried out. Simple random sampling was used to obtain the study subjects in the selected study area. Chi‑square tests and binary logistic regression were performed to find the association between selected risk factors.

    RESULTS

    Among the 928 elderly, 53.7% of them were males, 84.9% were between the age of 60 and 69 years, and 31% were 70 years and above. The study found that 66.5% of the elderly have mild activity limitations, 15.7% of them had moderate limitations, 4.8% of them had severe limitations, around 3% of them had extreme limitations, and 10.3% of them had no significant limitations. The binary logistic regression found people of age 65 and above (OR = 3.80), female gender (OR = 2.90), with hypertension (OR = 1.95), vision problem (OR = 1.92), decreased sensation of the foot (OR = 3.41), as the significant independent risk factors for activity limitation among the elderly.

    CONCLUSION

    The study found self‑reported activity limitations among the elderly to be nearly 90%. The SALSA scale may be used as a handy tool to identify the activity limitation in community‑based geriatric checkups.

    Keywords: Activity, chronic illness, elderly, epidemiology}
  • Daliya S. Rizvi

    Health education is a crucial consideration in the healthcare system and has the potential to improve global health. Recently, researchers have expressed interest in streamlining health education, utilizing digital tools and flexible curriculums to make it more accessible, and expanding beyond disease and substance abuse prevention. They have also expressed interest in promoting global health through health and safety promotion programs. Amidst the COVID‑19 pandemic, climate change, the refugee crisis, and overpopulation, healthcare crises are erupting all over the world. A lack of health education has and will continue to have a profound impact on community healthcare indicators, particularly in low‑income nations. Current priorities within the health education sector include digitization, equity, and infectious disease prevention. Studies and data from university journals and other academic databases were analyzed in a literature review. Health education programs have a significant positive impact on attitudes and behaviors regarding global health. Improving upon these programs by digitizing them and expanding upon the scope of health education will help ensure that such interventions and programs make a significant difference.

    Keywords: Chronic illness, digital health education, global health, health education, health education programs, health promotion, mental health}
  • Esmail Soltani *, Sadegh Izadi, Pardis Sharifi, Maryam Poursadeghfard
    Background

    Cognitive fusion is a substantial variable of acceptance and commitment therapy (ACT). Recently, various instruments have been developed to assess cognitive fusion, including a version relevant to medical illness referred to as the Cognitive Fusion Questionnaire-Chronic Illness (CFQ-CI).

    Objectives

    This study aimed to assess the validity and reliability of the Persian version of CFQ-CI in multiple sclerosis (MS) patients.

    Methods

    In a cross-sectional study, the Persian version of CFQ-CI and several other measures that assessed self-compassion, depression, and social anxiety symptoms were administered on 195 MS patients in Shiraz Emam Reza Clinic. Exploratory factor analysis (EFA), internal consistency, and convergent validity were used for data analysis.

    Results

    EFA revealed a 1-factor model. The Cronbachα was 0.92. As to the convergent validity, CFQ-CI had positive associations with measures of depression and social anxiety and negative associations with self-compassion.

    Conclusions

    Overall, this research supports the psychometric properties of the Persian version of CFQ-CI.

    Keywords: Acceptance, Commitment Therapy, Chronic Illness, Cognitive Fusion, Validity, Reliability}
  • Leila Masoudiyekta, Motahareh Musavi Ghahfarokhii *, Fatemeh Maqsoodi
    Background and Objective
    Diabetes is a chronic disease that can cause acute and debilitating complications such as cardiovascular disease, blindness, and kidney failure. Inadequate self-care and health literacy are major barriers to diabetes management and affect patients' participation in self-care activities. This study aims to evaluate the patient's health literacy status with type 2 diabetes in three areas of function, communication, and criticism and to determine the relationship between these factors and self-care behaviors in patients with diabetes.
    Materials and Methods
     A cross-sectional study was conducted on 118 diabetic patients referred to diabetes clinic 2019 through a regular random sampling approach. The level of health literacy and its subscales in patients was assessed by a Functional, Communicative, and Critical Health Literacy standard questionnaire. In order to analyze the data, descriptive statistics including mean, standard deviation, and frequency and analytical statistics such as independent t-test and one-way analysis of variance, Chi-square test, and multivariate linear regression were performed by SPSS software version 16.
    Results
    the mean score for total health literacy was 25.51±5.7, which is rated as average.  The results showed a significant relationship between functional health literacy and communication health literacy (r = -0.481), communicative and critical health literacy (r = 0.726), and between functional and critical health literacy (r = -0.426). Total health literacy had a statistically significant relationship with functional health literacy (r = 0.456), communication (r = 0.496), and critical health literacy (r = 0.534). 
    Conclusions
    Considering that communication, critical and functional health literacy is related to total health literacy and preventive behaviors in diabetic patients, treatment seems necessary.
    Keywords: Health Literacy, diabetes type2, Chronic illness}
  • فتانه سبزعلیپور، زهرا فتوکیان، حسین احمدی، زهرا جنت علیپور*
    سابقه و هدف

    مراقبین خانوادگی، بار مراقبتی زیادی را در هنگام مراقبت از سالمند مبتلا به بیماری مزمن متحمل می شوند. با توجه به اینکه بار مراقبتی تحت تاثیر عوامل مختلفی قرار دارد لذا این مطالعه با هدف مروری بر عوامل مرتبط با بار مراقبتی در مراقبان خانواده سالمندان مبتلا به بیماری های مزمن انجام شد.

    مواد و روش ها

    پژوهش حاضر یک مطالعه مروری است که با جستجو در پایگاه های اطلاعاتی Magiran، Irandoc، SID, PubMed, Google Scholar,Scopus, SienceDirect, بدون محدودیت زمانی با کلیدواژه های فارسی مراقبان، خانواده، سالمند، بار مراقبتی، بیماری مزمن و کلیدواژه های انگلیسی Caregivers, family, elderly, care burden, chronic illness انجام شد. در جستجوی اولیه، 65 مقاله یافت شد که پس از بررسی معیارهای ورود و خروج، درنهایت 36 مقاله بر اساس مرتبط بودن با موضوع وارد مطالعه شدند.

    یافته ها

    بار مراقبتی در مراقبان خانواده سالمندان مبتلا به بیماری های مزمن تحت تاثیر عوامل مرتبط با مراقبان (سن، جنس، وضعیت تاهل، تاب آوری، وضعیت سلامتی و...)، عوامل مرتبط با بیمار (میزان وابستگی بیمار به مراقب، همراهی چندین بیماری زمینه ای، اختلالات شناختی، سن و...) و عوامل مرتبط با مراقبت (مدت زمان مراقبت، کمک در فعالیت های روزمره زندگی و...) قرار دارد.

    نتیجه گیری

    با توجه به اینکه کاهش بار مراقبتی مراقبان باعث بهبود کیفیت مراقبت از سالمند می گردد لذا پیشنهاد می شود یافته های این پژوهش در تدوین و اجرای برنامه های حمایتی، آموزشی و مشاوره ای برای کاهش بار مراقبتی بکار گرفته شود.

    کلید واژگان: مراقبان, خانواده, سالمند, بار مراقبتی, بیماری مزمن}
    Fataneh Sabzalipoor, Zahra Fotoukian, Hossein Ahmadi, Zahra Jannat Alipour*
    Background and Objective

    Family caregivers carry a heavy care burden when caring for the elderly with a chronic illness. Due to the fact that the care burden is affected by various factors; therefore, the aim of this study was to review the factors related to the care burden in family caregivers of the elderly with chronic diseases.

    Methods

    This review study was conducted through searching, Irandoc, SID, PubMed, Magiran, Google Scholar, Scopus and SienceDirect without time limitation with the keywords caregivers, family, elderly, care burden and chronic illness (in English and Persian). In the initial search, 65 articles were found so that after reviewing the inclusion and exclusion criteria, finally 36 articles were included in the study based on their relevance to the subject.

    Findings

    The care burden in family caregivers of the elderly with chronic diseases was influenced by factors related to caregivers (age, sex, marital status, health status, resilience and ...), factors related to patient (degree of patient dependence on caregiver, comorbidity of several chronic underlying diseases, cognitive disorders, age and...) and factors related to care (duration of care, assistance in daily living activities and…).

    Conclusion

    Considering that reducing the care burden of caregivers improves the quality of care for the elderly; hence, it is suggested that the findings of this study should be used in the development and implementation of support, educational and counseling programs to reduce the care burden.

    Keywords: Caregivers, Family, Elderly, Care burden, Chronic illness}
  • Bahareh Ahmadi, Mahdieh Sabery, Mohsen Adib Hajbaghery*
    Background

    A majority of parents of children with chronic illness encounter physical conditions, as well as some degrees of burnout, anxiety, and depression. This study examined the prevalence of burnout in the primary caregivers of children with chronic conditions and its related factors.

    Methods

    A descriptive cross-sectional study was conducted on 385 family caregivers of children with chronic conditions who were selected by convenience sampling method from 4 healthcare centers in Kashan and Isfahan Provinces, Iran. A demographics questionnaire and the Maslach Burnout Inventory (MBI) were used to gather the required data. The MBI assesses caregiver burnout in 3 domains of emotional exhaustion, depersonalization, and reduced personal accomplishment. The obtained data were analyzed in SPSS using Mann-Whitney U test, Kruskal-Wallis test, Chi-Squared test, Fisher’s Exact test, Analysis of Variance (ANOVA), and linear regression analysis. P<0.05 was considered significant.

    Results

    The Mean±SD age of the examined caregivers and children were 38.2±8.04 and 8.9±4.9 years, respectively. Fifty percent of the research participants were fathers, and 74.3% had a family size of >4 members. The ill children were mostly boys (60%) and afflicted with renal (45.2%) or neurological (18.2%) disorders. The mean scores of the caregivers in the 3 subscales of emotional exhaustion, depersonalization, and personal accomplishment, were 22.21, 6.40, and 13.24, respectively. However, 62.3% and 47.9% of the caregivers experienced high or moderate levels of emotional exhaustion and depersonalization; nearly all of them (99.2%) experienced reduced personal accomplishment. The age of the child, the type of chronic condition, the frequency of medical visits, as well as the caregiver’s age, job, income, and family size, could predict caregiver burnout (r2=0.17).

    Conclusion

    The family caregivers of children with chronic conditions experience moderate burnout. Nurses and other healthcare providers should be aware of the signs of caregiver burnout and its contributing factors; accordingly; appropriate plans should be made for the periodic evaluation of family caregivers.

    Keywords: Burnout, Family caregivers, Children, Chronic illness}
  • Milad Darrat *, Gerard Flaherty
    Introduction

    Primary care practitioners and travel medicine physicians are primarily responsible for identifying individuals who may be unfit for overseas travel and consulting with them pre-travel. Pre-existing medical conditions such as cardiovascular disease, chronic respiratory conditions and diabetes mellitus (DM) have the potential to complicate travel journeys. A considerable percentage of travel-associated illness may be due to the decompensation of a pre-existing medical condition. This review seeks to address the challenges faced by travellers with each of these conditions, including recently updated and evidence-based practical approaches for travel with comorbidities.

    Methods

    Sources for this review were identified through searches of PubMed/Google Scholar for materials published between 1st January 2000 and 31st December 2019, using combinations of search terms.

    Results

    The volume of literature on travelling with a pre-existing condition exploded with more than 865 associated articles indexed on the PubMed alone as of March 2020. After screening titles, abstracts and, in some cases, the full text version of indexed articles, 121 articles were deemed relevant to the subject matter of this review.

    Conclusion

    Rational approaches to pre-planning for travel with a medical condition will contribute to the prevention of problems while in transit as well as when at the travel destination. It is imperative for health care providers to be aware of the preventative measures and current recommendations that should be taken before and during travel to protect individuals with a chronic illness. Further research and studies should be directed to protect this vulnerable group of travellers.

    Keywords: International Travel, Pre-Existing Condition, Travel, Chronic Illness, Elderly Traveller}
  • Elham Ghazanchaei, Iraj Mohebbi, Fatemeh Nouri, Javad Aghazadeh-Attari, Davoud Khorasani Zavareh*
    Background

    NCDs require an ongoing management for optimal outcomes, which is challenging in emergency settings, because natural disasters increase the risk of acute NCD exacerbations and lead to health systems’ inability to respond. This study aims to develop a protocol for a systematic review on non-communicable diseases in natural disaster settings.

    Methods

    This systematic review protocol is submitted to the International Prospective Register of Systematic Reviews (Registration No. CRD42020164032). The electronic databases to be used in this study include: Medline, Scopus, Web of Science, Clinical Key, CINAHL, EBSCO, Ovid, EMBASE, ProQuest, Google Scholar, Cochrane Library (Cochrane database of systematic reviews; Cochrane central Register of controlled Trials). Records from 1997 to 2019 are subject to this investigation. Three independent researchers will review the titles, abstracts, and full texts of articles eligible for inclusion, and if not matched, they will be reviewed by a final fourth reviewer. The proposed systematic review will be reported in accordance with the reporting guideline provided in the Preferred Reporting Items for Systematic review and Meta-Analysis (PRISMA) statement. We select studies based on: PICOs (Participants, Interventions, Comparators, and Outcomes).

    Results

    This systematic review identifies any impacts of natural disasters on patients with NCDs in three stages i.e. before, during and in the aftermath of natural disasters.

    Conclusion

    A comprehensive response to NCD management in natural disasters is an important but neglected aspect of non-communicable disease control and humanitarian response, which can significantly reduce the potential risk of morbidity and mortality associated with natural disasters.

    Keywords: Crisis, Natural Disaster, Management, Non- Communicable- Diseases, Chronic illness}
  • Gerard Flaherty *, Muhammad Haziq Hasnol, Lokman Hakim Sulaiman
    Introduction
    Last-minute travelers (LMTs) are a vulnerable group, because it may not be possible to adequately vaccinate them against exposure to infectious diseases. The purpose of this retrospective cross-sectional study was to describe the characteristics of LMTs attending a travel health clinic.
    Methods
    The following data was extracted from records of travelers attending the Tropical Medical Bureau (Galway, Ireland) over a 6-year period with less than 2 weeks remaining before their departure: gender, age, occupation, destination(s), purpose of travel, departure date, travel duration, travel group size, accommodation, past medical history, medications, and vaccination history.
    Results
    Of 7555 traveler records, 1296 (17.2%) were of LMTs, of whom 45 (3.5%) were recurrent LMTs. LMTs were equally likely to be male or female. The mean age of this cohort was 32.2 years. The most common travel destination was Asia, and holiday was the most frequent purpose of travel. The mean interval before departure was 7.54 ± 3.65 days, and the mean travel duration was 7.36 ± 2.3 weeks. The majority (n=454, 35.1%) of LMTs traveled in pairs. Approximately 2 in 5 (n=497, 38.4%) travelers reported a past medical history; over half (n=674, 52.0%) had previously received travel vaccinations. The majority (n=1202, 92.8%) of LMTs were unable to complete a scheduled course of pre-travel vaccines.
    Conclusion
    This study provides insight into the characteristics and travel patterns of LMTs. A large proportion of LMTs have pre-existing medical conditions. Further research should focus on the travel health risk-taking behavior of these individuals.
    Keywords: Travel, Travel Medicine, Vaccination, Chronic illness}
  • Ahmed AlAwlaqi*, Erik Koornneef, Aiman Gaili, Mohammed Hammadeh

    Over the decades, the delivery of long-term care (LTC) in the Middle East has encountered substantial hurdles due to inadequate resource allocation. As a result, the low-income and uninsured populations have encountered growing challenges in accessing quality healthcare. The objective of this study was to investigate the impact of co-payments or out-of-pocket payments on LTC access in the United Arab Emirates (UAE) in contrast to other Middle East countries. A quantitative secondary research approach was used in the study to collect relevant data on the topic from government reports, academic studies, and international healthcare institutions. The fndings indicated that long-term healthcare fnancing that largely focuses on out-of-pocket payments has substantial negative economic impacts on low-income households. Growing evidence from low income earning countries like Yemen, Syria, the State of Palestine, and Iraq shows evidence of households pushed into deep destitution and impoverishment due to expensive long-term medical expenses. The condition is worsened in families without insurance cover, among the elderly, and loss of household income resulting from chronic health. As such, the existing LTC fnancing plan in the Middle East largely exposes poor households without insurance cover or government fnancing or subsidies to substantial fnancial burden and poverty. In conclusion, there is an urgent need for research into alternative LTC fnancing strategies for coping with indirect and direct costs of illness to inform better social care policies for poor households in the Middle East.

    Keywords: Long term care, Chronic illness, Nursing home, Adult day care, Health care cost}
  • احمد احمدی قوزلوجه*، علی مهدی زاده تواسانی، حسین دلاوری، عاطفه رمضانی
    زمینه و هدف
    هنگامی که فرد تحت شرایط تنش زا، مانند مقابله با بیماری قرار می گیرد اغلب خود را با دیگران مقایسه می کند و این موضوع می تواند او را تحت تاثیر قرار دهد. این پژوهش با هدف بررسی روایی و پایایی نسخه فارسی مقیاس مقایسه اجتماعی در طی بیماری مزمن انجام شد.
    روش کار: روش این پژوهش توصیفی از نوع مطالعات همبستگی بود. از میان بیماران دیابتی مراجعه کننده به بیمارستان های شهر یزد در سال 1396، 200 نفر به شیوه نمونه گیری تصادفی انتخاب شدند. برای مطالعه روایی این مقیاس از روش های روایی محتوا، ملاکی و سازه استفاده شد. جهت سنجش روایی سازه از تحلیل عاملی اکتشافی و محاسبه ضریب همبستگی گویه ها و عوامل با نمره کل و برای بررسی روایی ملاکی نیز از مقیاس های حمایت اجتماعی (سهرابی و همکاران، 1386) و فرم کوتاه کیفیت زندگی (سازمان بهداشت جهانی، 1998) به عنوان ملاک استفاده شد. پایایی مقیاس نیز با استفاده از روش ضریب آلفای کرونباخ بررسی گردید. برای تحلیل داده ها از ضریب آلفای کرونباخ، ضریب همبستگی پیرسون و تحلیل عاملی اکتشافی با بهره گیری از نرم افزارSPSS  نسخه 21 استفاده شد.
    یافته ها: نتایج تحلیل عاملی اکتشافی با روش تحلیل مولفه های اصلی دو عامل برداشت منفی و برداشت مثبت را نشان داد. ضریب همبستگی بین گویه ها با نمره کل بین 31/0 تا 87/0 بود که همه ضرایب معنادار و تایید کننده روایی سازه مقیاس بود. همچنین ضرایب همبستگی بین مقیاس مذکور با حمایت اجتماعی 56/0 و کیفیت زندگی 72/0 به دست آمد که تایید کننده روایی ملاکی مقیاس بود. با استفاده از ضریب آلفای کرونباخ نیز پایایی کل مقیاس 92/0 و عامل برداشت منفی 98/0 و برداشت مثبت 86/0 به دست آمد.
    نتیجه گیری: با توجه به روایی و پایایی مطلوب نسخه فارسی مقیاس مقایسه اجتماعی در طی بیماری مزمن می توان از آن در پژوهش های مرتبط با مقایسه اجتماعی در افراد مبتلا به بیماری مزمن استفاده کرد.
    کلید واژگان: روایی و پایایی, مقایسه اجتماعی, همانندسازی, تقابل, بیماری مزمن}
    Ahmadi Ahmadi Ghozlojeh*, Hosein Delavari, Atefeh Ramazani
    Background
    Under stressful circumstances, such as confrontation with a life-threatening disease, people often make comparisons with each other, which can have effects on their psychological and physical well-being. This research aimed to evaluate the validity and reliability of Persian version of social comparisons during chronic illness scale.
    Methods
    The study was descriptive with a correlational design. Among the diabetic patients referring to the Goodarz and Sadoghi hospital hospitals of Yazd in 1396, 200 subjects were randomly selected. Validity of this scale was determined by using content, criterion and construct validity methods. In order to assess the construct validity, exploratory factor analysis and calculating the correlation coefficient of factors and items with total score, and to assess of criterion validity, the social support (Sohrabi et al, 2007) and world health organization's WHOQOL-BREF quality of life assessment scales as a criterion were used. Also, the reliability of the scale was evaluated using the Cronbach's alpha coefficient. Cronbach's alpha coefficient, Pearson correlation coefficient and exploratory factor analysis methods were used and data was analyzed using SPSS version 21software.
    Results
    Negative interpretation and Positive interpretation factors were extracted as using principal components analysis method. The correlation coefficient between the items with the total score was between 0.31 to 0.87, which were significant and confirms coefficients construct validity of the scale. Also, the correlation coefficients between this scale with social support and quality of life were 0.56 and 0.72, which confirmed the criterion validity. Cronbach's alpha coefficients of negative interpretation factor, positive interpretation factor and total scale were found to be 0.98, 0.86, and 0.92 respectively.
    Conclusion
    According to the results of this research, the Persian version of the social comparison scale during chronic illness can be used as a valid and reliable tool for researchers in the field of social comparison in people with chronic disease.
    Keywords: validity, reliability, social comparison, identification, contrast, chronic illness}
  • Maryam Moghimian, Alireza Irajpour, Habibreza Arzani
    Background
    Spiritual care is an integral part of holistic care. Its delivery should be based on patients’ spiritual needs.
    Objectives
    This study aimed to explore the interprofessional dimensions of spiritual care for chronically ill patients.
    Methods
    This exploratory qualitative study was done in Isfahan, Iran, on a purposive sample of 25 participants including patients, family caregivers, nurses, physicians, psychologists, social workers, and religious counselors. Data were collected through semi‑structured interviews and analyzed through conventional content analysis.
    Results
    The interprofessional dimensions of spiritual care for chronically ill patients fell into four main themes. The first theme was religious care with the three subthemes of assistance in doing religious rituals, assistance in referring to religious values, and assistance in doing religious activities. The second theme, that is, pastoral care, consisted of three subthemes, namely, assistance in finding the meaning of life/death/illness, assistance in achieving spiritual transcendence, and encouragement to communicate with self and to do spiritual exercises. The third theme was psychological care, the four subthemes of which included assistance in acquiring peace of mind, assistance in accepting and coping with illness, assistance in creating a source of hope, and empathizing with patients. Finally, the fourth theme was supportive care and included the four subthemes of support and assistance to meet basic needs, continuity of care after hospital discharge, providing patient and family education, and respecting patients.
    Conclusion
    Spiritual care has different dimensions. Its delivery necessitates adequate knowledge and expertise, close interprofessional collaboration, effective teamwork, and efficient patient referral system.
    Keywords: Chronic illness, Interprofessional collaboration, Iran, Qualitativestudy, Spiritual care}
  • Rod Sheaff *
    This paper considers an implication of the idea that proposals for integrated care for older people should start from a focus on the patient, consider co-production solutions to the problems of care fragmentation, and be at a system-wide, cross-organisational level. It follows that the analysis, design and therefore evaluation of integrated care projects should be based upon the journeys which older patients with multiple chronic conditions usually have to make from professional to professional and service to service. A systematic realistic review of recent research on integrated care projects identified a number of key mechanisms for care integration, including multidisciplinary care teams, care planning, suitable IT support and changes to organisational culture, besides other activities and contexts which assist care ‘integration.’ Those findings suggest that bringing the diverse services that older people with multiple chronic conditions need into a single organisation would remove many of the inter-organisational boundaries that impede care ‘integration’ and make it easier to address the interprofessional and inter-service boundaries.
    Keywords: Integrated Care, Primary Care, Multi-morbidity, Chronic Illness, Organisational Integration, Systematic Review}
  • Fouad Rahimi *, Alireza Gharib
    Background
    Considering the fact that hospitalization of a family member in the intensive care unit (ICU) can have a great impact on different aspects of the life of the patient’s family, the purpose of this study was to clarify the concept of family-centered care with chronic diseases admitted to ICU.
    Methods
    In this study, Rodgers’ evolutionary concept approach was used to analyze the concept of family-centered care for chronic patients. Criteria for entering articles, books and scientific information in English and Persian from 1980 to 2016 on family-based care and chronic diseases were selected using scientific databases.
    Results
    Family-based care in chronic diseases is a concept that process nature with care management, education and interaction. Also, three types of forerunners here include family-related predictions (family efficiency), self-confidence (system-related), adequate resources, social factors and cultural factors (related to care providers), participation (in this case).
    Conclusion
    The concept of family-centered care has evolved over the past few years in relation to chronic diseases. Nurses have significantly improved their knowledge of family care mainly focusing on improving the families of patients. Therefore, the nurses in the care groups have been significantly influenced and have been able to assume the responsibility of family-based care groups.
    Keywords: Concept Analysis, Concept Development, Family, Centred Care, Chronic Illness}
  • فاطمه ابراهیمی بلیل، فاطمه الحانی*، عباس عبادی، انوشیروان کاظم نژاد لیلی
    مقدمه
    با توجه به شیوع بیماری های مزمن، عوارض و مشکلات ناشی از آنها برای بیمار و خانواده، حمایت و توانمندسازی این بیماران ضروری به نظر می رسد. حمایت خانواده محور یکی از گرایشات جدید در پی تغییر نقش خانواده ها درمسئولیت پذیری مراقبت از بیماران می باشد. عزت نفس یکی از ابعاد الگوی توانمند سازی خانواده محور مطرح می باشد. لذا این مطالعه با هدف تعیین ابعاد و ویژگی های عزت نفس بیماران مزمن انجام گردید.
    روش کار
    پژوهش کیفی حاضر در زمینه عزت نفس بیماران مزمن و بر اساس تجربه آنان از نوع تحلیل محتوای هدایت شده در فاصله زمانی خردادماه 1394 تا فروردین 1395 و در بیمارستانهای وابسته به علوم پزشکی شهرهای اردبیل و خلخال در شمال غرب ایران انجام گرفت. داده ها به صورت مصاحبه ی فردی و نیمه ساختارمند از 18 بیمار مزمن، مراقب خانگی و پرستاربه دست آمد. آنالیز داده ها هم زمان با جمع آوری آن ها با استفاده از روش آنالیز محتوا کیفی هدایت شده صورت گرفت.
    یافته ها
    از تحلیل داده ها تعداد 239 کد اولیه در زمینه عزت نفس بیماران مزمن که یکی از ابعاد الگوی توانمند سازی خانواده محور می باشد استخراج گردید. که این کدها پس از تحلیل در زیر طبقات تاب آوری، خانواده حامی و اجتماع حامی قرار گرفتند.
    نتیجه گیری
    یافته های مطالعه حاضر نشان دهنده ابعاد عزت نفس بیماران مزمن می باشدکه با توجه به ابعاد حاصله برای عزت نفس، می توان با برنامه ریزی و انتخاب روش های موثرتر برای ارتقای این ابعاد، گامی برای توانمند سازی بیماران مزمن برداشت.
    کلید واژگان: بیماران مزمن, عزت نفس, الگوی توانمند سازی خانواده محور, توانمند سازی, مراقبین خانگی, تحلیل محتوای هدایت شده}
    Fatemeh Ebrahimi Belil, Fatemeh Alhani *, Abbas Ebadi
    Introduction
    Given the prevalence of chronic diseases and their consequences, supporting and empowering patients with such diseases and their families seems necessary. Family-centered support is one of the recent trends to change the role of families in giving care to patients. One aspect of the family-centered empowerment model is self-esteem. The aim of this study was to determine different aspects and characteristics of self-esteem in chronically ill patients.
    Methods
    This qualitative study was conducted in two university hospitals located in Ardabil and Khalkhal, northwest of Iran, from May 2015 to March 2016. Data were collected through holding personal semi-structured interviews with eighteen participants including chronically-ill patients, family caregivers, and nurses. Data analysis was performed concurrently with data collection through the directed qualitative content analysis.
    Results
    After analysis of the data, 239 codes about self-esteem of patients with chronic diseases that is a dimension of the family-centered empowerment model were extracted. Then, these codes were included in the subcategories of resilience, supportive family, and supportive society.
    Conclusions
    The findings of this study show the dimensions of self-esteem in patients with chronic conditions that according to these dimensions, with planning and selecting effective ways to promote these dimensions, a key step can be taken to empower the chronically ill patients.
    Keywords: Chronic Illness, Self-Esteem, Family-Centered Empowerment Model, Empowerment, Home Caregivers, Directed Content Analysis}
  • Akram Mansouri, Shahram Baraz*, Nasrin Elahi, Mojtaba Miladinia, Amal Saki Malehi
    Background
    Currently, studying the quality of life of patients and the level of their adaptation to their disease is considered an important issue in studies of chronic diseases. Heart failure affects the quality of life of patients in varying degrees.
    Objectives
    The present study aimed to determine the status of quality of life of patients with heart failure and their level of adaptation to their disease.
    Methods
    In this descriptive-analytical study, 76 patients with heart failure who had referred to one of the specialized therapy clinics of Shushtar in Khuzestan Province during year 2015 were selected based on the convenience sampling method and inclusion criteria. The research tools for collecting the required data and information included demographic information questionnaire, minnesota quality of life questionnaire, and an assessment form designed for patients with heart failure based on four dimensions of the Roy adaptation model. The data were analyzed using descriptive and analytical statistics (independent t-test).
    Results
    The results of this study showed that this disease leaves the greatest negative impact on the physical dimension of quality of life (32.97 ± 6.89). In addition, this disease has put the least negative impact on mental dimension of quality of life. Also, the lowest average adaptation was related to the dependence-independence dimension (28.71 ± 5.54). The results indicated that there is a significant difference between males and females in terms of physical and mental dimensions of quality if life, with lower averages of both in females (P = 0.037 and P = 0.007, respectively). The study findings also showed that different dimensions of adaptation are the same in males and females and there is no significant difference between them (P > 0.05).
    Conclusions
    The present study showed that quality of life and adaptation have a weak status in the studied patients with heart failure. By taking appropriate measures and training programs, nurses can help these patients improve their quality of life and level of adaptation to their disease.
    Keywords: Heart Failure, Quality of Life, Adaptation, Chronic Illness}
  • مژگان تائبی، حیدر علی عایدی، عباس عباس زاده، مجید کاظمی
    مقدمه
    خود مدیریتی فرایندی پویا است که در آن افراد بطور فعال شرایط بیماری مزمن خود را مدیریت می کنند. منابع ویژه ای که فرد برای خود مدیریتی انتخاب می کند یک فرایند فردی است که بر حسب زمینه محل زندگی متفاوت است. اگر چه فاکتورهای تاثیرگذار بر خود مدیریتی در مطالعات گوناگون تعیین شده اند، اما منابعی که بیمار برای خود مدیریتی پس از جراحی پیوند عروق کرونر بکار می گیرد کمتر مورد توجه قرار گرفته است. هدف از این مطالعه کشف منابعی است که بیماران برای خود مدیریتی پس از جراحی پیوند عروق کرونر بکار می گیرند.
    روش
    این مطالعه با یک رویکردکیفی بر اساس آنالیز محتوا صورت گرفت. داده ها از مصاحبه های عمیق نیمه ساختار یافته با 25 بیمار،3پرستار،4پزشک متخصص قلب و7 نفر از اعضای خانواده بیماران در یک مرکز بازتوانی قلب، بدست آمد.
    یافته ها
    8 طبقه در قالب 3 درون مایه از آنالیز داده ها بدست آمدکه این سه تم اساس منابع خود مدیریتی را در بیماران پس از جراحی پیوند عروق کرونر تشکیل می دادند. «معنا یابی»، «مثبت اندیشی»، «تمرکز بر توانمندی» در قالب تم «باز یافت قدرت روانی» بیان شد. «قدردانی از خداوند» و «استعانت مذهبی» منجر به تم «حفظ خود معنوی» و 3طبقه «جستجوی حمایت خانواده»، «ارتباط با همتایان» و«جستجوی حمایت مراقبین سلامت» منجر به تشکیل تم «حمایت اجتماعی» شد.
    نتایج
    بر طبق یافته ها مشارکت کنندگان خودشان، منابع روانی، معنوی و اجتماعی گوناگونی را برای مدیریت بیماری خود فعال می سازند. فعال سازی منابع باید با حمایت وارتباط دوجانبه با مراقبت دهندگان سلامت صورت گیرد.
    کلید واژگان: خود مدیریتی, بیماری مزمن, جراحی پیوند عروق کرونر, مطالعه کیفی}
    Dr Mozhgan Taeby, Dr Heidar Ali Abedi, Dr Abass Abbasszadeh, Dr Majid Kazemi
    Introduction
    Self-management is a dynamic process in which individuals actively manage their chronic illness. The purpose of this article was to outline self-management resources used by patients following coronary artery bypass graft (CABG) surgery. The choosing of self-management resources by individuals is a personal process which differs based on the individual’s background. Although factors effective on self-management have been determined in previous studies, the self-management resources used by patients after CABG have been overlooked.
    Method
    A qualitative approach based on content analysis was used in this study. Data were collected through in-depth semi-structured interviews conducted at a cardiac rehabilitation center in Kerman, Iran. Participants comprised 25 patients, 3 nurses, 4 cardiac specialists, and 7 family members.
    Results
    Through data analysis, 8 categories in 3 major themes were extracted. The major themes comprised the basis for patient's self-management resources following CABG intervention. In the first theme, "regaining mental strength", the categories of "Meaning making", "Positive thinking", and "Focus on capability" were identified. The 2 categories of "Thanking God" and "Religious help" caused the formation of the theme "sustaining spiritual-self". In the third theme, "social support", the 3 categories of "Seeking family support", "Contact with peers", and "Seeking health care provider's support" were identified.
    Conclusion
    According to the findings, participants themselves activate psychological, spiritual, and social resources to manage their illness. However, resource activation should be carried out with the support of and through a mutual relationship with health care providers.
    Keywords: Self, management, Chronic illness, Coronary artery bypass graft (CABG) surgery, Qualitative study}
  • لیلا مردانیان دهکردی، ناهید شاهقلیان
    مقدمه

    نارسایی مزمن کلیه یکی از بیماری های مزمن و تهدید کننده زندگی است. اختلالات ناشی از بیماری و درمان شرایط زندگی را برای این بیماران سخت کرده به گونه ای که این بیماران همواره نیازمند سازگار شدن با شرایط ایجاد شده هستند. این پژوهش به منظور بررسی ارتباط سلامت معنوی با سازگاری در بیماران تحت درمان با همودیالیز انجام گردید.

    مواد و روش ها

    این مطالعه از نوع تحقیقات همبستگی است. تعداد نمونه 96 نفر بود و نمونه گیری به صورت سرشماری در میان بیماران تحت درمان با همودیالیز که برای درمان به مراکز همودیالیز تحت پوشش دانشگاه علوم پزشکی اصفهان مراجعه می کردند، انجام شد. جهت جمع آوری اطلاعات، پرسشنامه ای مشتمل بر سه قسمت: بخش اول مربوط به خصوصیات دموگرافیک، بخش دوم سازگاری با بیماری و بخش سوم سلامت معنوی مورد استفاده قرار گرفت. جهت آنالیز داده ها از آزمون های آماری پارامتریک و نان پارامتریک استفاده شد.

    نتایج

    نتایج حاصل نشان داد 25 درصد افراد دارای سطح سلامت معنوی بالا، 74 درصد افراد دارای سطح سلامت معنوی متوسط و 1درصد افراد دارای سطح سلامت معنوی پایین بودند. بین نمره سلامت معنوی و نمره سازگاری و ابعاد آن رابطه مستقیم وجود داشت (000/0 > p). به طوریکه با افزایش نمره سلامت معنوی، نمره سازگاری نیز افزایش می یافت.

    بحث و نتیجه گیری

    نتایج حاصل از این پژوهش نشان داد که میان سلامت معنوی و نمره سازگاری و ابعاد آن ارتباط مستقیم وجود دارد، از آنجا که سطح سلامت معنوی در بیماران تحت درمان با همودیالیز در حد متوسط بود، لذا باید ترتیبی اتخاذ گردد که مراقبتهای معنوی بر اساس نیاز بیماران به آنها ارائه گردد تا سطح سلامت معنوی افزایش یابد.

    کلید واژگان: سبک های مقابله ای, سلامت معنوی, همودیالیز, بیماری های مزمن, شیوه حل مساله و شیوه هیجانی}
    Leila Mardanian Dehkordi, Nahid Shahgholian

    Aim and

    Background

    Chronic Renal Failure is One of the chronic and life-threatening diseases.. these patients require adapting to achieve desirable psycho social and physical health condition. This study was performed to examine the relationship between spiritual health and coping style in patients undergoing hemodialysis treatment.Methods and Materials: This study is a correlation research That done among 96 samples who were refer for treating with hemodialysis to hemodialysis centers affiliated to Isfahan University of Medical Sciences. For data collection, a questionnaire consisting three parts was used; the first part on the demographic characteristics, the second part on the coping style, the third part on spiritual health. The data analyzed by Descriptive and analytical statistical tests.

    Findings

    The result indicated that 25 % of patients had high level, 74% had intermediate level & 1% had low level spirituality. Findings showed a direct relation between spiritual health score and coping score and its dimension (p<0.000). So that increase in the spiritual health score causes increase in the coping score (r=0.445).

    Conclusions

    Level of spiritual health in most patients was moderate and there was direct relation between coping style and spiritual health so for increasing coping with illness care plan should be done base on patient's spirituality needs.

    Keywords: Coping Style, Spiritual Health, Hemodialysis, Chronic Illness, Problem, Based Emotion, Based}
  • حیدرعلی عابدی، سمیرا قویمی، منصوره کریم اللهی*، احسان قویمی
    زمینه و هدف
    سندرم های تالاسمی گروهی از اختلالات هتروژن هستند که با کاهش یا فقدان سنتز زنجیره های آلفا یا بتاگلوبین همراهند. وجود یک کودک مبتلا به تالاسمی در خانواده بر تمام جوانب زندگی والدین از جمله کار، سلامت روانی و اجتماعی و روابط خانوادگی و اجتماعی آن ها تاثیر می گذارد و چنانچه والدین از حمایت کافی برخوردار نباشند، دچار مشکلاتی در ابعاد مختلف زندگی می شوند. این پژوهش با هدف بررسی تجربه حمایت در زندگی والدین کودکان مبتلا به تالاسمی انجام شد.
    روش کار
    این پژوهش با رویکرد کیفی پدیده شناسی و جمع آوری داده ها از طریق مصاحبه عمیق انجام شد. سپس داده ها از طریق روش کلایزی مورد تحلیل قرار گرفت. 12 نفر از والدین کودکان مبتلا به تالاسمی ماژور به روش مبتنی بر هدف انتخاب شدند. شرکت کنندگان والدینی بودند که در بخش تالاسمی بیمارستان بوعلی شهرستان اردبیل به همراه کودک خود جهت انجام رویه های درمانی در سال 1392 حضور داشتند.
    یافته ها
    مفهوم اصلی در این پژوهش نداشتن حامی و پشتوانه شامل سه زیرمفهوم بی پناهی و درماندگی، مشکلات مالی و انگ بود.
    نتیجه گیری
    نتایج پژوهش حاضر نشان داد که والدین کودکان مبتلا به تالاسمی طیف وسیعی از مشکلات از جمله بی پناهی و درماندگی و انگ والدین را تجربه می کنند که نیاز به حمایت های عاطفی و روانی و اجتماعی مناسب را جهت داشتن جامعه ای سالم گوشزد می کند.
    کلید واژگان: تجربه, تالاسمی, والدین, پدیده شناسی}
    Ha Abedi, S. Ghavimi, M. Karimollahi *, E. Ghavimi
    Background and Objectives
    β-Thalassemia major is a disorder characterized by defective production of hemoglobin and excessive destruction of red blood cells. Having a child with thalassemia impacts all aspects of parents’ life consisting work, psychosocial life and family and social relationships and all aspects of their life would be affected if they have not enough support. This study was conducted to explore experiences of support in parents of children with thalassemia.
    Methods
    The research has done with phenomenology and data collected using deep interviews. Then data analyzed using Colaizzi method. Twelve parents of children with thalassemia were selected by purpose-based approach to sampling. The participants of this study were the parents of children with thalassemia in BuAli Hospital (Ardabil) at 2013.
    Results
    Lack of support was the main concept found and consisted of helplessness, economical problems and stigma as subthemes.
    Conclusion
    The results of this research indicated that these parents experience a wide range of problems such as helplessness and stigma, which recommend need to adequate emotional, psychological and social support of these parents to have healthy community.
    Keywords: Life Experiences, Thalassemia, Parents, Phenomenology, Chronic Illness}
  • Forough Rafii, Naima Seyed Fatemi, Ella Danielson, Christina Melin Johansson, Mahnaz Modanloo
    Background
    Patients’ compliance to treatment is an important indicator for evaluating the successful management in chronic illnesses. Despite the fact an applicable definition of compliance is required to suitable intervention and research, this concept is not clear and there is no consensus concerning its meaning, definition, and measurement. The aim of this study was to explore the concept of compliance and to formulate a working definition.
    Materials And Methods
    Theoretical phase of Schwartz-Barcott and Kim’s Hybrid Model of concept analysis was used to analyze the concept of compliance. Data were collected by using literature reviews. Medline, CINAHL, Ovid, Elsevier, Pro Quest and Blackwell databases were searched from 1975 to 2010 using the keywords “Compliance,” “Non-compliance,” “Adherence,” and “Concordance.” Articles published in English were selected if they included adult patients with chronic illnesses and reported attributes of compliance; 23 such relevant articles were chosen.
    Results
    The attributes of compliance included patient obedience, ability to implement medical advice, flexibility, responsibility, collaboration, participation, and persistence in implementing the advices. Antecedents are organized into two interacting categories: Internal factors refer to the patient, disease, and treatment characteristics and external factors refer to the healthcare professionals, healthcare system, and socioeconomic factors. Compliance may lead to desirable and undesirable consequences. A working definition of compliance was formulated by comparing and contrasting the existing definitions with regard to its attributes which are useful in clinical practice and research.
    Conclusions
    This finding will be useful in clinical practice and research. But this working definition has to be tested in a clinical context and a broad view of its applicability has to be obtained.
    Keywords: Adherence, chronic illness, compliance, concept analysis, hybrid model}
نکته
  • نتایج بر اساس تاریخ انتشار مرتب شده‌اند.
  • کلیدواژه مورد نظر شما تنها در فیلد کلیدواژگان مقالات جستجو شده‌است. به منظور حذف نتایج غیر مرتبط، جستجو تنها در مقالات مجلاتی انجام شده که با مجله ماخذ هم موضوع هستند.
  • در صورتی که می‌خواهید جستجو را در همه موضوعات و با شرایط دیگر تکرار کنید به صفحه جستجوی پیشرفته مجلات مراجعه کنید.
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