جستجوی مقالات مرتبط با کلیدواژه « care burden » در نشریات گروه « پزشکی »

Parents of children with phenylketonuria experience a significant care burden due to the provision of continuous care. It will be easier to bear if parents are self-efficacious in providing care. Follow-up care can be supportive in this regard. This study was conducted to determine the effect of implementing the continuous care model on the self-efficacy and care burden of parents with a child with phenylketonuria.

The present study is a semi-experimental study that was conducted in 2019 at the clinic of Amin Shahr Hospital in Isfahan. 72 parents of children with phenylketonuria were first selected by the available method and randomly assigned to two groups of 36 people, test and control. In the test group, the follow-up care model was implemented in four months. The control group received the usual training. The data collection tool was a demographic questionnaire, Zarit care pressure, and Domka parental self-efficacy, which the participants answered before and one month after the study.

In the test group, the average self-efficacy after the study was significantly higher than before, but there was no significant difference in the control group (P < 0.05). The average self-efficacy before the intervention was not significantly different between the two groups. The average care burden after the intervention was significantly lower than before in the test group, but there was no significant difference in the control group (P < 0.05). There was no significant difference between the two groups in the average care burden before the intervention. Still, after the intervention in the test group, it was significantly lower than the control group (P<0.05).

The implementation of follow-up care for parents with a child with phenylketonuria increases self-efficacy and reduces the burden of care. Therefore, it is suggested to use this model during discharge for this target group.

It is observed that crises such as a child suffering from cancer and chemotherapy can lead to a decline in mental cohesion and resilience in mothers, which in turn can affect their ability to care for their children. This study aimed to explore the relationship between resilience and the caregiving burden of mothers of children who have cancer and are undergoing chemotherapy in the teaching hospitals of the University of Iran.

In this descriptive, cross-sectional, and correlational study, 123 mothers of children with cancer undergoing chemotherapy were selected using convenience sampling in Hazrat Ali Asghar and Hazrat Rasool Akram educational centers. The data collection tools were the demographic questionnaire of mothers and children, the Connor and Davidson resilience measurement scale (2003), and the parental care burden questionnaire Zarit et al. (1980). After collecting the data, SPSS version 22.0 statistical software was used to analyze data using descriptive and inferential statistical tests (independent t-test, Pearson's correlation coefficient, and regression analysis). The significance level for all data was considered 0.05.

The mean age of the mothers was 36.05 ± 7.56 years. The mean resilience total score of mothers was 21.19 ± 71.01, indicating the moderate resilience of the mothers. The burden of care in 43.9% of mothers was low, and 32.5% at an average level. The mothers' total care burden mean score was 27.05 ± 19.79. A statistically significant relationship existed between mothers' resilience mean score and the caring burden mean score (P < 0.001). Also, the findings showed a significant relationship between the mean resilience score and the education level of mothers (P=0.03) and an inverse relationship between the mean resilience score of mothers and the number of children (P=0.01). There was a significant relationship between the mean score of care burden of mothers and income level (P=0.009).

The study results indicate that the level of resilience in mothers who care for children undergoing chemotherapy due to cancer is average. Furthermore, based on mothers' and children's demographic factors related to resilience and caregiving burden, and the relation between the caregiving burden on mothers and the impact of resilience on their caregiving burden, the study suggests designing and implementing programs to educate and provide nursing services to these mothers. Such programs aim to reduce their care burden and promote resilience.

Background & Aims:

 Caring for a patient undergoing hemodialysis is a stressful experience that causes a heavy care burden. With the outbreak of COVID-19, family caregivers of these patients had increased worry about the risk of infection in the dialysis centers. This fear can make their care burden heavier. This study aims to investigate the impact of coping skills training on the care burden experienced by family caregivers of patients undergoing hemodialysis.

Materials & Methods:

 This quasi-experimental study was conducted in 2020 on 60 family caregivers of patients undergoing hemodialysis at the Comprehensive Treatment Center for Special Diseases in Birjand, Iran. Participants were randomly assigned to intervention and control groups. The intervention group received coping skills training in six sessions. All participants completed the Zarit burden interview before, immediately after, and one month after the intervention. The data were analyzed in SPSSsoftware, version 19.

Results :

The two groups were homogeneous regarding demographic information (P>0.05). Both groups had a moderate to severe care burden before the intervention. A significant difference was reported in the care burden score of the intervention group after training (P<0.001).

Conclusion :

Coping skills training can reduce the care burden of the family caregivers of patients undergoing hemodialysis. Therefore, coping skills training can be used by nursing managers to reduce the care burden of family caregivers of patients with hemodialysis.

Background and

The covid-19 pandemic, with its wide spread, created major challenges for informal caregivers (family caregivers and health volunteers). The current study was conducted with the aim of determining the care burden of informal caregivers (family caregivers and health volunteers) in patients with covid-19.

The present study is a descriptive study that was conducted cross-sectional in the city of Mashhad in 2019. Informal caregivers (192 family caregivers, 192 health volunteers) of patients with covid-19 were included in the study using available sampling method. The research tool included demographic information checklist and Novak and Gast care burden questionnaire. The data was analyzed using IBM SPSS version 25 statistical software.

The average care burden score in home caregivers and health volunteers was 80.63 ± 12.62 and 72.17 ± 16.71, respectively (p<0.05). There was a direct and significant correlation between the care burden scores of volunteer health and family caregivers with the number of days caring for patients and hours of care per day (P<0.05).

The burden of care in family caregivers is higher than that of health volunteers, which can have negative effects on their health and well-being. Caring burden can cause physical and psychological complications for informal caregivers, especially family caregivers, which is important for health policymakers to pay attention to.
Keywords: care burden, family caregivers, health volunteers, Covid-19

Caregivers of patients with psychiatric disorders play an important role in the treatment and follow-up process of these patients.

This study aimed toinvestigate the correlation between stigma and care burden and self-efficacy in family caregivers of patients with psychiatric
disorders.

The present descriptive-correlational study was performed from January 2021 to May 2022 in Ghods Educational-Medical Center of Sanandaj among300 caregivers of patients with psychiatric disorders. Individuals were selected according to the inclusion criteria and by available sampling method. Data collection tools were standard stigma questionnaires for mentally ill patients, Novak and Gost care burden and Scherer’s general self-efficacy. Data were analyzed using SPSS software version 23 and descriptive statistics and Pearson correlation coefficient at the significant level of less than 0.05.

There was a statistically significant relationship between all dimensions of care burden (except evolutionary care pressure and social care pressure) and total care burden (p <0.001) with stigma. Also, no correlation was found between stigma and self-efficacy variable.

Considering the relationship between family caregivers’ attitudes and the amount of care burden in caregivers of patients with psychiatric disorders, it is suggested to hold training workshops for caregivers and also to pay attention to the importance of positive attitudes in mass media.

Caring for children with cancer can impose a heavy care burden on their parents. The aim of this study was to determine the effect of educational support program on the care burden of the parents of children with cancer admitted to the oncology department of Besat Hospital in Sanandaj in 2021.

This semi-experimental study was conducted in the oncology department of Besat Hospital in Sanandaj in 2021. 31 participants were randomly selected. Data were collected using Zarit care burden questionnaire before, immediately after and one month after the intervention. After the educational needs assessment, based on the educational needs of the caregivers, training courses were held for the parents. Then, in a period of one month, parents' communication with the researcher, parents' education and meeting their needs were supported. Using SPSS version 24 software, data were analyzed by descriptive and inferential statistics.

A decrease of 12.29 ± 9.33 units in the total care burden score before the intervention compared to that immediately after the intervention and a decrease of 6.54 ± 5.012 units in the total care burden score immediately after the intervention compared to that one month after were observed which were significant. Therefore, the burden of care decreased significantly after the intervention (P=0.001).

The results of this study showed that use of educational support program could reduce the care burden of caregivers.

Hope is one of the most critical components for mothers with disabled children. The present study aimed to predict life expectancy based on care burden, loneliness, and social adjustment in mothers who have children with cerebral palsy in Khorram Abad city.

This descriptive research was cross-sectional and correlational design. The study population includes all mothers with children with cerebral palsy who had a medical record in the welfare centers of Khorram Abad City in 2019. In this study, 50 mothers were selected using convenience sampling methods. The data were analyzed by Pearson's correlation and multiple regression analysis using SPSS version 19 software.

The results showed significant negative correlations between care burden and loneliness with life expectancy and a significant positive correlation between social adjustment and life expectancy in women who have children with cerebral palsy (P ≤0.001). The results of multiple regression showed that research variables can explain 54% of life expectancy variance.

It can be said that in the women with children with cerebral palsy, the lower the pressure of caring and the feeling of loneliness, the higher their social adaptation and life expectancy. Thus, welfare organizations should use strategies to increase the life expectancy of these women.

Schizophrenia is the most severe chronic psychiatric disorder that associated with impaired social and occupational abilities. In addition to the patient this disorder also affects the entire family system. The care burden is the psychological, physical and social stress that comes to caregivers as a result of long-term care. Therefore it causes many problems such as burnout, anxiety, and depression for caregivers. The aim of this study was to investigate the effect of resilience training on reducing the care burden of families with schizophrenia.

This study was semi-experimental with a pre-test-post-test and a randomized controlled group. The statistical population includes all caregivers of schizophrenia patients referred to Roozbeh psychiatric hospital in Tehran in 2019. After obtaining written consent, thirty-six people who like to participate in the study were divided into experimental and control groups by random sampling method. After deducting the drops, fifteen people were in the experimental group and eighteen people in the control group. The research instrument was the Zarit burden interview and intervention protocol, then Henderson and Milleston resilience components training program was applied to the experimental group. The control group received no intervention. Data were analyzed by SPSS software using ANCOVA.

The results showed that the social group intervention in the experimental group with the approach of resilience training was statistically significantly different from the control group and it was able to significantly increase the total resilience score compared to the control group.(P<0/05)

Group social work interventions aimed at increasing resilience in caregivers of psychiatric disorders can be effective in increasing resilience and provide a basis for improving the quality of life of these people. The results of this study help social workers to use the resilience model to promote health, increase social, economic, and welfare performance and improve the level of tolerance of caregivers; leading to educating and working with families of schizophrenia patients.

The complexity and protracted nature of diabetes causes care burden and anxiety for caregivers of diabetic patients. The aim of the present study was to investigate the effect of family-oriented self-care programs on care burden and anxiety of caregivers of elderly patients with type 2 diabetes.

This quasi-experimental study was conducted on 92 caregivers of elderly people with type 2 diabetes in Khatam Al-Anbia Hospital in Behshahr, who were randomly divided into two groups: an experimental group and a control group. Data were collected using the Care Burden Questionnaire and the Spielberger Anxiety Questionnaire. The data were analyzed using SPSS 16 through descriptive and inferential statistical tests (analysis of covariance) at a 0.05 significance level.

The results showed that the mean and standard deviation of care burden and anxiety in the experimental group were 96.54 ± 3.65 and 121.30 ± 5.60 before training and decreased to 61.8 ± 4.73 and 79.67 ± 4.57 after education, respectively. This result means that the education significantly reduced the average caregiver burden and anxiety (p < 0.05).

The research findings indicated that educational programs reduced the care burden and anxiety of caregivers of patients with diabetes. Therefore, hospital decision makers are recommended to develop educational programs for caregivers of these patients.

Objectives :

Stroke is the second leading cause of death and the third leading cause of disability worldwide.  Caregivers of stroke patients experience high levels of care burden that can affect their physical and psychological health. It is necessary to use interventional programs for family caregivers to prevent or reduce their care burden. This study aims to determine the effect of education and telephone follow-up on care burden of the family caregivers of older patients with stroke.

Methods & Materials :

This randomized controlled clinical trial was conducted on 79 family caregivers of older patients with stroke admitted to the neurology department of Bu-Ali hospital in Qazvin, Iran who had been discharged in the past 1-6 months. Then, they were randomly divided into intervention and control groups by the block randomization technique. For the intervention group, 12 weeks of education and follow-up was presented through telephone and social media. Data were collected by demographic checklist, Barthel Index for Activities of Daily Living, and Zarit burden interview. The independent t‐test, paired t‐test, and chi‐square tests were used for analyzing the data.

Results:

 Before the intervention, there was no significant difference between the two groups in the amount of care burden (26.20 ± 11.08 for intervention group and 28.70 ± 11.63 for the control group) (P = 0.333); however, after the intervention, the care burden of the intervention group (18.28 ± 10.07) and the control group (29.80 ± 11.76) showed a significant difference (P < 0.001). The results showed that 12 weeks of education & telephone follow-up caused a significant reduction in the care burden of the family caregivers (P< 0.001).

Conclusion:

 The education and telephone follow-up can be a useful and cost-effective method for reducing the care burden of the family caregivers of older patients with stroke.

Family caregivers carry a heavy care burden when caring for the elderly with a chronic illness. Due to the fact that the care burden is affected by various factors; therefore, the aim of this study was to review the factors related to the care burden in family caregivers of the elderly with chronic diseases.

This review study was conducted through searching, Irandoc, SID, PubMed, Magiran, Google Scholar, Scopus and SienceDirect without time limitation with the keywords caregivers, family, elderly, care burden and chronic illness (in English and Persian). In the initial search, 65 articles were found so that after reviewing the inclusion and exclusion criteria, finally 36 articles were included in the study based on their relevance to the subject.

The care burden in family caregivers of the elderly with chronic diseases was influenced by factors related to caregivers (age, sex, marital status, health status, resilience and ...), factors related to patient (degree of patient dependence on caregiver, comorbidity of several chronic underlying diseases, cognitive disorders, age and...) and factors related to care (duration of care, assistance in daily living activities and…).

Considering that reducing the care burden of caregivers improves the quality of care for the elderly; hence, it is suggested that the findings of this study should be used in the development and implementation of support, educational and counseling programs to reduce the care burden.

Care provision for Alzheimer's patients is associated with many challenges. Caregivers face high levels of care burden which leads to their reduced quality of life. Therefore, the current paper aims to investigate the relationship between care burden, care preparedness and the quality of life in the home caregivers of the elderly with the Alzheimer's disease.

This was a descriptive analysis research on 150 caregivers visiting Iran Alzheimer's Association, selected through simple random sampling and the table of random numbers. The instruments used in the study consisted of a care burden standard questionnaire, care preparedness questionnaire and caregivers’ quality of life questionnaire. Data was analyzed using SPSS V25 and statistical tests including independent t-test, one-way ANOVA, Pearson’s correlation and simultaneous multiple regression analysis, with a significance level of 0.05.

According to the descriptive findings, the mean score (standard deviation) was calculated to be 17.31 (6.05) for the variable care preparedness, 28.62 (7.66) for care burden and 28.23 (2.48) for caregivers' quality of life. The results showed significant direct relationships between the age of caregivers and care burden, and also between the care preparedness and caregivers' quality of life. Moreover, there were significant negative relationships between care preparedness and care burden, and also between care burden and caregivers’ quality of life (p-value < 0.05).

Care preparedness is a predictor of care burden. An increase in care preparedness reduces caregivers' burden. Moreover, care preparedness and care burden are significant predictors of caregivers' quality of life. An increase in care preparedness causes an increase in caregivers’ quality of life and an increase in care burden reduces caregivers’ quality of life.